Understanding Down Syndrome: resources for new parents

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Understanding Down Syndrome: resources for new parents

A sweet little girl not quite 2 years old with Downs Syndrome

We love to help, and most importantly, we want to share how we can help with parents whenever we can. Recently, we received this question by email by one of our community supporters:

I am wondering if you can direct me to some great resources on behalf of some friends of mine. They just had their second baby and he has Down Syndrome.

There are so many resources on the topic and initial “Google” searches on the topic can be overwhelming and intimidating so we’ve wanted to put together five places online that new parents with a little one with Down Syndrome can start.

Many, many therapists at Children’s Support Solutions have extensive experience working with children with Down Syndrome and this post is a starting point for families. We want to help new and expecting parents learn where they can go for help today, and onward, for their family and to help them understand what a diagnosis of Down syndrome means.

Six Down Syndrome resources for new and expecting parents

  • The Down Syndrome Association of Toronto (DSAT) is a charitable, non-profit organization created in order to promote a positive, accurate image of persons with Down syndrome. DSAT has put together an exceptionally through New Parents Package that you can find here: http://www.dsat.ca/resources/new-parents-package
  • The Canadian Down Syndrome Society (CDSS) supports self-advocates, parents and families through all stages of life. The CDSS has put together information for new parents here: http://www.cdss.ca/parents/
  • More Information and resources regarding local parent support groups for parents in Ontario have been shared by the CDSS here: http://www.cdss.ca/blog/local-contacts/ontario/
  • More Information and resources regarding local parent support groups for parents in Quebec have been shared by the CDSS here: http://www.cdss.ca/blog/local-contacts/quebec/
  • The mission of the National Down Syndrome Society (NDSS) is to be the national advocate (in the US) for the value, acceptance and inclusion of people with Down syndrome. They’ve compiled resources for new and expecting parents here: http://www.ndss.org/Resources/New-Expectant-Parents/
  • There’s a new book published (download for free) from Down Syndrome Pregnancy, a program administered by the National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute, titled Welcoming a Newborn with Down Syndrome.

These resources related to Down syndrome are all organized by support groups, made up of parents, who have “been there” and know what new or expecting parents need.  Please share your thoughts about the resources we’ve shared and let us know if you have found other resources helpful for new parents so that we can share those as well!

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